What Data We Collect
When you use our forms, we collect the information you provide to us, which may include:
Join Us Form:
- Name and email address
- Age range and gender
- Country of residence
- Your interest in helping BFRB REACH or participating in research
- Your BFRB status (whether you have a BFRB, are a loved one, or have professional interest)
- Whether you’d like to receive updates
Contact Form:
- Name and email address
- Your message content
We also automatically record the date and time of your submission.
How We Use Your Data
We use your information to:
- Respond to your enquiries and messages
- Connect you with volunteer opportunities if you’ve expressed interest
- Include you in research studies if you’ve consented to participate
- Send you updates about BFRB REACH activities (only if you’ve opted in)
- Improve our services and understand our community better
We will never sell your personal information to third parties.
How We Store Your Data
Your data is stored securely in our database systems. We implement appropriate technical and organizational measures to protect your personal information against unauthorized access, alteration, disclosure, or destruction.
Data Retention
We retain your personal information for as long as necessary to fulfill the purposes for which it was collected, or as required by law. If you request deletion of your data, we will remove it within 30 days unless we are legally required to retain it.
Your Rights
You have the right to:
- Access - Request a copy of the personal data we hold about you
- Correction - Request that we correct any inaccurate or incomplete data
- Deletion - Request that we delete your personal data
- Withdraw consent - Withdraw your consent to processing at any time
Contact Us About Privacy
If you have any questions about this Privacy Policy, wish to exercise your rights, or have concerns about how we handle your data, please contact us at:
Email: privacy@bfrbreach.org
We will respond to your request within 30 days.
Last updated: February 2026